Poem written for PDA Action Day 15th May 2018

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PanDA, me & I

The flip side of me

Is a Panda you see

Its not double trouble

But sure is a struggle

Understand the whole me

Include Panda I plea

Coexistence we strive

To help us all thrive

But Rolling resistance

Best describes our existence

Don’t say to us ‘NO’

Or Panda will blow

Too much long chatter

Just sounds like a clatter

It helps to have choice

So allow us a voice

Communication break-down

Why must we drown?

In opinions so strong

We want to belong

A N X I E T Y free

Is the magical key

A formula to master

If not then sadly disaster!

Panda, me & I

Isn’t a pie in the sky

Excluded from schools

Panda struggles with rules

Being left-out is a sin

We want to join in

Restrain us they say

They’re unable to play

Frustration to take part

Having friends is an art

Anger is what’s seen

But that’s not what we mean

Our rules aren’t the same

Please try not to blame

Its unfair being this way

Wearing this mask everyday

Judgment, cross faces

Confusion & strange places

Take us from here

And remove all of this fear

Tippy toeing not necessary

Parental vocabulary

We need the control

Or becomes a sinkhole

What’s important for you

Might be a battle to choose

No it’s not so absurd

Panda needs to be heard

Help panda, help me

Then you will all see

In order to succeed

Understand don’t impede

Pre-empt & distraction

To soothe Pandas reaction

Information needs time

Slow processing isn’t a crime

Indirect instruction creates

Direct demand devastates

Panda may often be wrong

Avoidance obviously strong

Acceptance of us is a must

Over time it builds up our trust

Empower us to fully function

Minimise our fear of destruction

So keep all this in mind

And then you will find

A better day will unfold

Thank you, our story is now told.

 

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Not quite a Valentine poem!

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The Incident

Ring ring goes the phone

Number I note and voice so distinct

Mrs. Young, oh good you are home

Heavy heart, deep sigh

Chin drops to the chest

Not again, with exasperated cry

 

The common line that I dread

There’s been an incident

That bloody line rings in my head

There’s one thing for sure

It will be written on my gravestone

When I am no more

 

I listen to the chaos unfold

The triggers always unknown

A sudden chill makes me go cold

Coping mechanisms none were in sight

He struggled, he swore

Frustration, fear, fight and flight

 

The incident told with detailed description

Honesty yet delicate in her delivery

Underlined with such great precision

I hold the phone ever tighter

Pursed lips, eyes closed

Will his life ever get brighter?

 

Her reassurance that, ‘This too shall pass’

Don’t worry, calm has now resumed

And he’s happy again, back in his class.

However a report she now needs to make

It’s the same process for all

It’s purely for Health and Safety sake.

 

Not as many incidents so far this year

They say, he’s doing quite well

But there will be more yet I fear.

Ring ring goes the phone

The number I note

But this time I hide, there’s no-body at home!

#PDA Awareness Day- Sunday 15th May 2016

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PDA Awareness Day is Sunday 15th May (thats this weekend:-)

As its National Limerick Day today I thought Id make up a little limerick for Sunday… If you like it, please feel free to share especially on PDA Sunday x

Autism they said is like Rainman
PDA they said is naughty kid syndrome
They have closed minds bound by fear
and would rather we all just disappear.

Judgemental faces they simply cannot relate
Instructing us to medicate & sedate
They really don’t want to understand
Nor will they ever try to lend a hand.

Don’t look down on us with expression so glum
We simply march to the beat of our own drum
My last point for your personal reflection
is wake up people, we are all on the spectrum!

What do all the children/adults on the autistic spectrum have in common?

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answer: US – those who are NOT on the spectrum

So before writing or talking about their behaviours/aggressions/quirky ways or discussing medications or treatments – It may be extremely helpful to check out your own behaviours/aggressions/quirky ways and by the way, work out who needs the medication/treatment more… YOU or them?