Why did my PDA son have to fail in five schools before I was listened to?

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This post is with our huge thanks to:
Special Needs Jungle – http://www.specialneedsjungle.com
for their continued support in raising the profile of Pathological Demand Avoidance Syndrome.

Why did my PDA son have to fail in five schools before I was listened to?

#PDA Awareness Day- Sunday 15th May 2016

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PDA Awareness Day is Sunday 15th May (thats this weekend:-)

As its National Limerick Day today I thought Id make up a little limerick for Sunday… If you like it, please feel free to share especially on PDA Sunday x

Autism they said is like Rainman
PDA they said is naughty kid syndrome
They have closed minds bound by fear
and would rather we all just disappear.

Judgemental faces they simply cannot relate
Instructing us to medicate & sedate
They really don’t want to understand
Nor will they ever try to lend a hand.

Don’t look down on us with expression so glum
We simply march to the beat of our own drum
My last point for your personal reflection
is wake up people, we are all on the spectrum!

PDA Awareness Day Wednesday 15th May 2013

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 Thanks to Graeme Storey for creating this wonderful resource page ahead of PDA Awareness Day 15th May – http://www.thepdaresource.com

PDA awareness day – 15th May 2013

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PDA awareness day - 15th May 2013

BIG NEWS: 15th May 2013 lets raise awareness and acceptance and offer support for the whole family

PDA conference slides

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http://uk.search.yahoo.com/r/_ylt=A7x9QV4SDSBRUQUAMHxLBQx.;_ylu=X3oDMTE2czBjOW9pBHNlYwNzcgRwb3MDMTAEY29sbwNpcmQEdnRpZANTTUVVSzIyXzg0/SIG=15ios6bjl/EXP=1361083794/**http%3a//www.autism.org.uk/~/media/NAS/Documents/News-and-events/NAS-conferences/Pathological-Demand-Avoidance/PDA-Conference-Plenary-session-Phil-Christie.ashx

PDA information

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All the PDA information and support can now be found in one place at:

http://www.pdasociety.org.uk

Includes their wonderful resource page at:

http://www.pdasociety.org.uk/resources

Also a link to the educational and handling strategies at:

http://www.pdasociety.org.uk/education/educational-and-handling-guidelines

Formerly known as the PDA Contact Group, the PDA Society aims to offer support, advice and information to anyone involved with an individual with PDA, whether suspected or diagnosed, child or adult.

The PDA Society is a voluntary organisation, overseen by a management committee, each of whom is a parent of a child with PDA.

The PDA Contact Group was originally set up in 1997 to put people with an interest in PDA in touch with each other, which we still do today through our discussion forum. The change in name to the PDA Society is a reflection that we are becoming more than a ‘contact group’ and see ourselves as the voice for PDA, running awareness campaigns and sharing information.

Objectives include:

to raise awareness and understanding about the condition
to signpost people towards gaining a diagnosis
providing a telephone support line
sending people information through email or post about PDA
putting families in touch with each other locally
imparting good quality information about the condition as new research comes out
and providing people with information to set up their own local support groups.
We will fund these objectives through direct donations to the group, proceeds from awareness days, and any funding we manage to secure through grants/awards. We aim to become a registered charity in the future to be able to further those aims. In 2013 we were successful in obtaining a Big Lottery Fund grant to fund our Awareness Matters campaign, which included the production of this web site.