Not quite a Valentine poem!


The Incident

Ring ring goes the phone

Number I note and voice so distinct

Mrs. Young, oh good you are home

Heavy heart, deep sigh

Chin drops to the chest

Not again, with exasperated cry


The common line that I dread

There’s been an incident

That bloody line rings in my head

There’s one thing for sure

It will be written on my gravestone

When I am no more


I listen to the chaos unfold

The triggers always unknown

A sudden chill makes me go cold

Coping mechanisms none were in sight

He struggled, he swore

Frustration, fear, fight and flight


The incident told with detailed description

Honesty yet delicate in her delivery

Underlined with such great precision

I hold the phone ever tighter

Pursed lips, eyes closed

Will his life ever get brighter?


Her reassurance that, ‘This too shall pass’

Don’t worry, calm has now resumed

And he’s happy again, back in his class.

However a report she now needs to make

It’s the same process for all

It’s purely for Health and Safety sake.


Not as many incidents so far this year

They say, he’s doing quite well

But there will be more yet I fear.

Ring ring goes the phone

The number I note

But this time I hide, there’s no-body at home!


Why did my PDA son have to fail in five schools before I was listened to?


This post is with our huge thanks to:
Special Needs Jungle –
for their continued support in raising the profile of Pathological Demand Avoidance Syndrome.

Why did my PDA son have to fail in five schools before I was listened to?

#PDA Awareness Day- Sunday 15th May 2016


PDA Awareness Day is Sunday 15th May (thats this weekend:-)

As its National Limerick Day today I thought Id make up a little limerick for Sunday… If you like it, please feel free to share especially on PDA Sunday x

Autism they said is like Rainman
PDA they said is naughty kid syndrome
They have closed minds bound by fear
and would rather we all just disappear.

Judgemental faces they simply cannot relate
Instructing us to medicate & sedate
They really don’t want to understand
Nor will they ever try to lend a hand.

Don’t look down on us with expression so glum
We simply march to the beat of our own drum
My last point for your personal reflection
is wake up people, we are all on the spectrum!

PDA hits Brighton pier


This is what a mini meltdown ‘might’ look like, every child with autism may react differently when the red mist blankets their coping abilities. The autistic spectrum is exactly that… Its a SPECTRUM with two ends of extremes and every thing in between the two. A strategy may work for one child but not for another, and often what works one week may not work the next.

Children and adults naturally feel frustrated when they are unable to do something or when things don’t turn out the way they expected or hoped, however, what we need to remember is that a child with autism may quickly go from feeling frustrated to feeling anxious, self conscious, scared, angry within seconds; their heart is racing, their vision may become distorted or tunnelled, their hearing intensified, and the quickest way to bring a child back from explosion is through patience, kindness, understanding and acceptance. Some children may need little to no dialogue, others may need re-assuring, some may need gentle holding or manoeuvring into a safe place with less on-lookers. Please be aware when you stand and stare, the child sees your frowns, hears your comments and feels your judgements, all of which are unhelpful to the situation or to the child’s already low self as esteem.

Today is…
World Autism Awareness Day